We saw Becky's PCP yesterday. She's taking her off her blood pressure meds and we'll just be keeping an eye on it at home. It's mostly been hanging out in the mid-upper 90s with an occasional low 100s with the wrist cuff at home. It was around 120 at the last two doctors' appointments. Her doctor says as long as it's not living over 140 we're good.
I'm anticipating we'll be trying the diuretics again soon since it looks like she's getting more fluid in her abdomen again. She had a radiology appointment on Wednesday to check the ascites and drain if necessary. More blood work scheduled for Friday to see how her kidneys are doing and get more liver numbers for the MELD score.
The MELD (Model for End-stage Liver Disease) score is a new thing to start paying attention to. the MELD score is a mathematical formula based on several numbers from the bloodwork related to liver function. It ranges from 6 (healthy liver) to 40 (non-functioning liver). Becky's initial number was a 7 in April/May. This score is used to determine your priority on the transplant list.
Becky's having a hard time with the phone and TV lately. Most of the time she can't make her fingers work well enough to text. If you get an answer to a text message, it's just as likely me typing it for her as it is her typing. I plan to look for some apps to help her out but I'm not sure how well she'll do learning new things. The bottom line is that she's still doing "OK." I at least don't think we're headed back to the ER and her blood pressure seems more stable. We're still adjusting to a new normal and waiting to see where we stand as far as a possible transplant goes.
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